Living with an Invisible Disability | Sarah Skinner

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Information Living with an Invisible Disability | Sarah Skinner | TEDxYouth@Dayton

Title	:	Living with an Invisible Disability \| Sarah Skinner \| TEDxYouth@Dayton
Lasting	:	7.17
Date of publication	:
Views	:	76 rb

I so resonate with this I have discalculia Everyone overestimates what I can do and it’s frustrating to explain my disability when people refuse to believe it’s real🤯🥺😖
Comment from : Julia Shalom Jordan

This talk truly resonates with me! I agree individuals with invisible disabilities shouldn't be treated differently than others with visible disabilities
Comment from : Eleanor Elaborates

dear Sarah, how do you keep your heart rate steady standing on that stage! you're unbelievably brave! God bless you and Justin!
Comment from : SLSLSL

I’m on beta blockers
Comment from : Angela

I have an invisible disability that I was diagnosed with when I was six months old, and when we go on holiday we sometimes get stopped, because I’m not in a wheelchair anymore even though I still get the side effects of my surgery, and people think I’m just wearing a lanyard but not disabled One time they got my dad to drink half of the medicine I needed before letting us through I don’t know what they thought it was but they actually said I looked fine I loved this talk and it just reminded me of that Half of my meds Gone For a two week holiday
Comment from : Emily

So many people are being criticized for not "looking" disabled It warms my heart to see such a powerful young woman taking the reins to spread awareness Good for you! 💛
Comment from : Thor Uram

I am 31 with TOF/APV which is a complex congenital heart defects I have had two open heart surgeries Thanks to my congenital heart team at Hopkins I am stable and doing much better today
Comment from : PinkHawk191

bSome disabilities are invisible, your reaction to them is not/b
Comment from : Jay Shirley

One doesn't live with invisible disability One exists!! In the US, if you have an invisible disability, you are neglected, misunderstood, stigmatized, cancelled, and impoverished In shortyou are screwed!
Comment from : Therese Davis

Because of my own invisible disability, I had to listen to your video at 07 speed, in order to be able to cope with the large amount of information being presented Otherwise I found your talk to be an excellent one I also like your use of humour to lighten up what is after all a serious subject I can easily identify with everything you have said about the way in which doctors and the general public view invisible chronic illnesses very differently from visible acute, short term conditions Wondering how both of you are going, with this having been posted in December 2015 And while the end of this pandemic, is not easy to predict
Comment from : Brian Reeves

Sad to know Now a days humans are all born with or without seeing disability Why are these mysterious mysteries occur Hopefully many of us grow n learn to become loving kind n serving humanity Great talk Thank you, bless you All your dreams come true
Comment from : Arline George

This girl is legit! Her message is real I have hydrocephalus + a device in my brain On the outside I look fine but the when/if the device fails (without warning) I have to get emergency brain surgery (and/or risk coma, death, brain + eye + ear damage) The condition affects 1 in 750 babies but is severely underfunded because the affected largely seem normal (Unless they have brain damage)
Comment from : kurihai

Do pacemakers help this condition?
Comment from : HappyPiano

You are amazing
Comment from : Neurowhiz

Sarah is great, isn't she?
Comment from : Guy Perry

This is an excellent & very honest talk Very well said, hopefully she knows how appreciative some are to hear this & know their not alone 💞
Comment from : Dazyredfox87

A heart defect is NOT INVISIBLE
Comment from : Ashley Madison

BOYS RULE REEEEEEEEEEEEEEEEEEEEEEEE
Comment from : Dr Martles

What a inspirational young lady ,and her brother also x we complain about silly things all the time ,instead we should be blessed to be healthy x my daughter had a brain tumour removed when she was 3 years she is 34 now x she has 3 chronic conditions She is always in and out of hospital x But in all these years I have never heard her complain about anything to do with her health x she is my absolute hero x I tend to find children and young adults that have chronic illness never do complain they have this special power with in them selfs to get on with life and cope x Beautiful young girl x x 🥰
Comment from : Lynn Trafford

I have some personal invisible disabilities such as a little auti sm, central auditory disorder, panic disorder and complex partial epilepsy but I am a girl college student and my mom I always looked up too even my three dogs and a rabbit I just wish that other people realize how important it is to learn about invisible disabilities in a respectful manner and be an organization that respects those with these problems
Comment from : Emma Ruark

If you liked this video, please join my group on Facebook called The Magic of Inclusion!
Comment from : Kaily Georgen-Schwartz

I have found that Nichiren Buddhist spirituality helps me deal with my own invisible disabilities
Comment from : Life Choices

Very brave young lady Your family must be very proud I liver with an "invisible disability" and you are so right about people not being able to quite grasp 100 some things when they can't see them
Comment from : 5trezip23

IT IS SO TRUE! I have an invisible physical disability I have CRPS and I can't lift more than 2 pounds and struggle with chronic pain as well as limited range of motion in my right arm Most of the time I don't wear a wrist support or compression gloves, so if you were to look at me you wouldn't really notice a physical disability- unless you look close at the swelling and color change in my right hand and arm I worry about traveling and think how am i going to be able to put my carry on in the overhead and what if a flight attendant doesnt want to help because they think im totally capable of doing it myself I get anxious about traveling but i want to so bad it is sad that i cant even lift my carry on bag she is right when she says you have to start thinking about things that no one really pays attention to
Comment from : Katarina Villalta

Colitis and Asperger's Syndrome are invisible disabilities
Comment from : Schnitzel Schnizel

Does this have Closed Caption avail?
Comment from : Deborah Jacobs

I started a beta blocker and an ACE inhibitor at the age of 24 Should have been much earlier, but it took a long time to figure out what was wrong with me as my EKGs are normalhad to have an echocardiogram! Fortunately these drugs are usually well tolerated and have made a huge difference for me But yes, there’s no such thing as “too young to be sick” and there’s no such thing as “looking disabled” Anyone could have a disability - if they’ve adapted well and are ‘abled-passing’ you might even know them pretty well and have no idea
Comment from : Shaye Eller

once she said she was diagnosed with Long QT syndrome I was so damn excited I have the same issue and I too take a beta blocker Even better yet, I was in band throughout highschool, colorguard specifically Everything she described is accurate and I can feel her pain once she discussed the struggles she has to face that others take for granted She did an amazing job 💕
Comment from : spamuelito

Sarah is someone that’s been there for me for so much and she is such an understanding and compassionate person I’m so proud to see her up on a stage speaker her mind
Comment from : mira alfano

GREAT vid! It is incredibly difficult living w/disabilities - thank you so much for doing this talk!
Comment from : YNergy

You are so sweet , life is not fair Please understand this It gets easier when you understand that
Comment from : KidCity Lynnwood

I have Nail Patella Syndrome which can be seen and noticed by those who know or doctors, but mostly people don't realise that I have a disability At 17 I have to walk with walking aids and sit down I used to love playing netball and walking but now I'm not aloud to do anything that is high impact Everyday I commute to my college on a train and bus, I can't stand up on either, despite having a obvious walking aid people do not give me a seat, even if they are in the disabled seating, I have anxiety and don't like to ask people to move Even sitting down for a long period of time can really hurt Later this year I am going to Harry Potter world, I am worried that I won't be able to walk around it and disappoint myselfa hardcore Potterhead and my sister who also love HP I can not be cured, surgery is possible but there is a chance it could get worse In the UK there are only a few doctors that specialises in NPS, I am going to see one in a few days
Comment from : Radically Dark

Captions?
Comment from : Abby W

Hyperhidrosis is an invisible disability
Comment from : Jack 445

It has been my personal experience too that invisible handicaps are more difficult to live withOthers don't believe you when you tell them that you have a disabilityBut these videos also teach that we should strive to be overcomers
Comment from : Life Choices

my greetings to you and to your brother
Comment from : This is My loooveeeyy

She made very good points about invisible illnesses I suffer from chronic pain myself, several bulging discs and degenerative disc disorder in my neck along with narrowing and flattening of my spinal cord I also severe TMJ (jaw pain and very limited opening) I also have pretty severe depression and anxiety, some of which stems directly from living with chronic pain, and I also have high blood pressure I'm 32, so none of this is fun and it's definitely frustrating sometimes that people can't see my issues However, I so have to strongly disagree with her statement that "all disabilities are the same and one is not worse than another They are all equally as bad" I think she was going for a specific point here, but that statement is really misinformed Yes, all disabilities deserve acknowledgement, respect, accommodations, etc, but there are some higher functioning than others Some that require countless hours and me dollars to maintain Some that limit a person's ability to work or to have a family, etc I'm thankful every day that I have the mobility I have Yes I'm limited in my daily activities, but I can walk and play with my kids I would never say my issues are just as bad as someone with a life threatening or otherwise severe disability or illness
Comment from : RockGoddess002

Feeling down about my chronic illness and watching videos, it made me perk up when she mentioned Cincinnati children's because that's my hospital! I'm glad i was able to find another teen I could relate my illness too
Comment from : anna

She is a fantastic speaker for someone so young
Comment from : Kristal Ehrhardt

Like, even though your heart is hosed, you're awesome You go, girl!
Comment from : pantyflash

Sarah is adorable, articulate and shines a light on a subject a lot of people never think about I appreciate her opening this discussion
Comment from : MAdemsoiselle Rhapsody

I feel so bad of her and her brother
Comment from : watermelon girl

Thank you for sharing this story - everything said about chronic health conditions and invisible disabilities is something that more people should speak out about The challenges of having a chronic disability is difficult - add to it being an invisible disability and being young becomes a challenge in and of itself People say "you're too young to have so many medical problems" and they say it in a way that is like - they'll believe it when they see it So many chronic health conditions & diseases that are invisible disabilities are extremely challenging and they affect the quality of life for so many people There is much to be said on this topic and I think this young lady is a pioneer for spreading awareness of this issue
Comment from : Kristen Fuchs

Sarah is my sister (Yes I am the one she mentions in her talk) I am very glad TedxYouth Dayton gave her this opportunity to speak As she mentioned in her talk, recognizing invisible disabilities is just as important as recognizing "obvious" or visible disabilities
Comment from : Justin Skinner

What a great opportunity to be able to talk about disability with Tedx Talks (:
Comment from : RichClashChair Vlogs

She is so young, its so great that she supports her family and is so ambitious Very inspirational for my vlogs Thank you for sharing!
Comment from : Fliskography